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H A E M A P P E A L |
| Haemophilia Cure Appeal | |
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Haemappeal is the Haemophilia Cure Appeal of the
Katharine Dormandy Trust for haemophilia and allied disorders based at the Royal
Free Hospital in London UK. The pages on this site were created in 1997 by Alison Wheeler after she was discovered to have a mild factor XI deficiency (which, thankfully, has had absolutely no effect on her life!). If you require current information about the charity - haemappeal - or the work of the centre you will need to contact them directly. | |||
| A baby boy born with haemophilia faces a lifetime of bruising, painful internal bleeding, potential joint damage, and complete dependency on regular blood product injections to supply him with the clotting factor missing from his blood. One in every 5,000 males has haemophilia and |  It is now 25 years
Since Dr Katharine Dormandy founded the trust which bears her name at the Royal
Free Hospital in London. Those twenty-five years have seen both great sadness
and great progress. First, Dr Dormandy died at a very early age and long before
her work was finished. Then, so many patients found themselves HIV positive as a
result of contaminated factor VIII; and the damage has continued with the
emergence of hepatitis infection. | |||
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| girls are not immune, being affected by factor XI deficiency and von Willebrand's disease. | Nevertheless, we have to be profoundly grateful for Katharine Dormandy's foresight and dedication, for so much has been achieved to advance the treatment of haemophilia and allied disorders as a result of the Trust and the funds it has raised. The sythesis of factor VIII which has led to the much safer recombinant product, the much improved patients' facilities at the Centre, the new laboratories, and the staff now devoted to the search for a gene therapy treatment whcih could transform the lives of haemophiliacs, are some of the milestones of these 25 years. | |||
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| The Trust is based at the Katharine Dormandy Haemophilia Centre, Royal Free Hospital, Hampstead, London, where we have concentrated our funding to create a renowned and pioneering research centre which is an International Training Centre for the World Federation of Haemophilia. The Trust is registered under the Charities Act 1960, No 262434 | ||||
| Links to further pages about the effects and different forms of haemophilia | ||||
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